Tuesday, November 11, 2008

To Uncle

Dear Uncle,

I am calling you this because honestly, until today, I never knew your name was Steve. This is always what Liz has called you - just Uncle. I only met you a couple of times so I never got to taste the fabulous ribs that your niece talked about this morning or hear your jazz collection. However, even though I didn't really know you, I certainly know the kind of man you were. And how your simple actions made such an impact in my life - a life that remained mostly unknown to you.

You did an amazing thing in the fall of 2006 by saying yes to a sick young woman - the daughter of your late brother. Liz's heart was failing and her life was falling apart. She needed a new heart and a home. You offered your home and a chance for that new heart.

When I met Liz on that mid-October night, about 10:00 pm, it was by chance. I was headed to the ice machine and happened to see that the patient in the room across the hall also had my cardiologist and my same ridiculous liquid restriction. There were plenty of liquid restrictions on the floor but currently there weren't any heart patients and certainly no young'uns.

Sitting on the bed was a woman, maybe my age? maybe a bit younger?, with long blond hair pulled up in a ponytail. She was bent over her meal tray coloring with crayons in a kids coloring book. There was a little dish of hard candy next to her crayons. Her room was empty, unlike my room crowded with hand-drawn banners and pictures. A Halloween movie was on the television.

I think I may have startled her when I poked my head in and asked, "hey, you get ever tired of hearing that you are too young for this?" She looked up, her blue eyes were guarded.

"Yeah," she was suspicious. Later I learned that she was thinking, who the hell is this all in my business? I don't blame her. I was, after all, very much in her business. I was a little nervous, a little scared and a little hopeful.

Until Liz, I'd spent all 18 years of my heart condition without ever meeting any other woman or person my age with cardiomyopathy. I had a cadre of old-man friends - Jim and Ray and the other cardiac rehab guys that were my comrades in low-sodium diets, lasix and beta blockers. But they all developed their conditions late in life. None of them had been told they couldn't have kids because of their heart. None of them worried about making lifetime commitments for fear that a future wouldn't be theirs.

Unbelievably (or maybe not, on second thought), there she was. In end-stage heart failure like me, bloated like me, out-of-breath like me, unsure like me, a little angry like me, and also, unfortunately, tiny like me. I couldn't believe it. Here, after being absent my whole life, I'd finally met a friend - a fellow patient - in for the same reason, the same thing. It was an instant and painful connection.

The next morning the doctors asked me if I had met the new patient yet. A young woman named Liz. I had - and despite the initial excitement of meeting someone else, there was another more pressing question in both our minds. Were we competing for a heart?

The doctors said no. But Liz and I knew better. We were both very very small - and as we quickly found out - we had the same blood type too. This relationship - on such fragile ground could go either way. I did the only thing I could do. I gave it up to God.

A wise friend of mine recently told me that God always puts what we need, not necessarily what we think we want, in front of us. God put Liz there, front and center. It was up to me to decide.

So we became friends. We liked to hang out together at night and walk with our IVs to the IMCU waiting room to sneak Doritos and Funyans from the vending machine. I learned of her hard life in California, her fresh start here and her struggle to find a family. We talked about our fears and the long roads already behind us. We talked about girl stuff. We played games in my room and we cried. A lot.

Eventually Liz left to go home. We were never again able hang out together on the floor. From then on, we were on our own but always so close. The doctors wouldn't tell us anything about each other, but the nurses kept us updated. There were times when we were rooms apart but couldn't walk to see each other and were too tired to call. Chris and my parents would shuttle info back and forth as they could.

And God's plan was His plan all along. The heart that was maybe, possibly supposed to be mine - but really never was - went to Liz on November 11th. When the news was broken to me, gently for fear I would respond in anger or jealousy, I cried with joy. I called her and in my voice, raspy from the ventilator, told her that she would blaze the trail for us both. She needed to tell me everything - she would forever be my sister-in-transplant.

Ironically enough, this northern California girl who came to Colorado for a heart, had her heart custom delivered from the Bay area. She may be the only person whose heart actually did leave San Francisco.

Uncle, you have no idea what bringing Liz out here has done for me. You've given me an awesome gift. A friend to walk with me on this hardest of paths. A sister to understand the frustrations, the struggles, the pain - someone with whom I can cry, laugh and above all, shout "I HATE BIOPSIES" and will totally understand. Someone who is ALWAYS on my side, no matter what.

For all of this, I say thank you. Thank you for opening your heart and your home to Liz. Thank you for giving me this wonderful friend whom I dearly love.

Rest in peace, Steve.

2 comments:

Anonymous said...

you do not know me but im sure u know of me. my name is christine and i am lizs little sister. although i could not be with her during the rough times im am more then greatful to u for being there and for being a friend to my sister when she needed one. this blog made me cry but not out of sadness for the loss of my uncle and friend but because the world has lost such a caring person. also just a fraction of what both u and my sister had to go through. it makes my heart ach to hear the suffering the two of u and many others had to endure. i just wanted to stop by and write u a note thanking you for writing this blog so i might get a glimps. so thank you and hope to finaly meet u someday. NEENER.

Lennie Weese said...

You are so lucky to have a "transplant sister". I wanted somone like this so badly and so far haven't found anyone, luckly I have a very great, close family.